that;s how she looked. actually, i've seen dogs in kennels and well....they look better. perhaps a dog with mange in the corner of a kennel? i dunno. i'd have to see pics to compare.
it is no secret that i do not like my mother. or that we don't have a relationship. or that i really go see her in the nursing home. cuz why should i have a relationship with her just because she's in a nursing home? it's been a long year and some weeks since i found her lying on the floor of her filthy fetid apartment where she had been for nearly 48 hours in a soiled diaper.
i went crazy last year trying to fight to get her long-term nursing care. it took nearly a year, but i finally did it. months of paperwork, assets being spent down, planning funerals, etc. all to make sure that she got the care that she needs. she cannot care for herself. someone has to do it, and it can't be me. for numerous reasons.
i thought i made the right decision. the place that took her in as sub-acute after the mini-strokes / mri seemed nice. she liked it. more importantly, they weren't going to move her when she went to medicaid. most homes will if there no medi bed available - or at least that's what they told me when i called. so she stayed there. 30 minutes away. where i thought they were taking care of her. i was wrong.
it's so easy for me to blame her for things. she let herself go - didn't take her meds, always depressed, always isolated. always alone and refusing to do anything to help herself. her apartment was evidence enough of that. my whole life this has been happening. my whole life wondering when she was going to take responsibility for herself and let me live my life and stop raising her. i thought this was the solution. i thought i was free once and for all from hving to raise my mother. i was wrong.
aj hates going there. i do too. i hate having her here - she picks at herself. sheds eplithelials all over my car and house. she whines like a 5 year old. she can't have a conversation. she has horrid dandruff and picks at her skin. it's foul. she leaves her room at the nursing home like a mess. i thought it was her being her. her MO if you will. once a slob, always a slob i figure. i was wrong.
thursday i went in for her annual care meeting where they discuss all the things that have been going on over the past year. i was told that she had refused showers - for a tleast a week - and got nasty with an aide. now she is a bitch, but i don't know if she's capable of being nasty like that. she's too childlike now. i digress. i was told that she's been sleeping 20+ hours a day, and watches tv the others. i was told she had to be put back into PT & OT because her muscles are atrophying again. then i saw her. and vomited a little in my mouth.
i can't begin to describe how i felt. or how she looked. i've seen better looking homeless people in nyc. cleaner even. but she's not homeless. and i freaked. on her. she'll be 54 in two weeks and she can't get up to take a shower? wtf? she can't tidy up her half of teh room? she can't put away her things? she can't put the laundry in the hamper? come on! she should be leaving the room....she should be doing this or that. she should be.....i was wrong.
i went back today to bring her some gentler soap and some fixodent. at 10:20am. i greeted the nurs with "good morning beverly! how is she today?" and was met with "i dunno....when yu get her up, tell her the face cream came in." so i go in, wake her up and realize she's in the same exact thing i saw her in on thursday - stains and all. and on thursday, it was at least a day in those clothes. i know she showered last thurs. i saw them take her into the shower room. and apparently she put back on the same clothes. gah. i turned around and saw three, yes, three days of "snacks" on her tray (which, btw, sits in the sun) of opened milk cartons and cheese sandwiches....at least i think it was cheese. so i went nuts.
why didn't you change? i did, didn't i? uh...no.
why is there three days of snacks here rotting? i forgot to throw them out.
why is the same pile of dirty clothes sitting beside your bed? i dunno.
why, oh why can't she just do the little things?!!? i wanted to scream, to run out of there and wash myself with borax. the aide was taking her for a shower. so i left. i stopped at the nurses station and asked beverly is she has been more compliant since our meeting - my reponse? you're gonna love this. "how should i know? i haven't been here all weekend" and didn't even lift her head to look at me.
then it hit me. it's not her. she can't help being mentally ill. she can't help being depressed. yes, to a point she can. i will not excuse her from everything - but damnit....that's why she's there! so she can be taken care of. taking care of someone is NOT leaving rotting food in their room in the sun for three fucking days. it's not letting them sit in their own filth and not shower. it is certinately not letting someone sleep for 20+ hours a day and not force them out of their rooms. no wonder she's flying downhill....they're pushing her!
so i started. and i bitched, and i moaned and i threatened to call in the state. they're moving her off the mental floor and upstairs to a better floor where the nurses aren't dealing with the severely mentally ill. they will make her shower up there. they will make her go to activities and not let her sleep all goddamn day long. this they assure me.
the social worker used the word "neglect" - said the nurses on the second get complacient - she will start writing everyone up. my girls in admissions who saved my sanity a year ago made the move without hearing the whole story. they assured me it won't happen again. they told me how great this one nurse is upstairs on three. how he always gets the residents out and about, and makes them friends.
so i told her. and she cried. thought she was being punished for having to move. i tried to explain it's nothing she did....but what they didn't do. she doesn't understand. she's afraid.
and so now i sit here. wondering if i did the right thing? i know by complaining, they will take better care of her. i know they know i'm sniffing now....and if i don't like what i smell i will pull the alarm. i will go in there armed for bear.
but did i do the right thing? should i give it time to see if it improves? but what about the other patients? don't they deserve better too? what happens if i call in the state? if they shut it down, where will she go?
i just don't know what to do and i feel so lost. and like such a horrible person. for not seeing it earlier. for not caring enough. for not realizing that despite her ability to do something, the depression and isolation is taking that away from her. ftlog....this is not the 1700's - ben franklin's design of solitary in prisions to reform just made them crazy with the "eye of god" - wtf makes these people think isolation was good idea to allow?
i'm just so lost. and now i have to put on my hat (no shower for me today....eek) and a smile and work the bookfair. for my son. sigh.